Tag Archive: self-determination


It’s Official!

In the “Choosing A PATH” entry I talked about Julian’s person centered plan and the list of things he wants to achieve in the next 3-5 years.  While the golf cart and being able to drive is fun and exciting the one item from that list that Julian constantly (and I do mean CONSTANTLY!) reminds me about is getting him a service dog.

Getting a service dog isn’t as simple as going to a breeder or pet store and buying a new puppy.  There are different kinds (service dog, guide dog, therapy dog, medical alert dog, psychiatric dogs, autism dogs), there are different breeds, different training programs, waiting lists, and significant costs to be considered and then the specific tasks that you need based on your specific disabilities.

I started researching and found that Guide Dogs For The Blind estimates it costs them $45,000 to train a guide dog. (You read that right… forty-five thousand dollars!) They have a multi-year waiting list and don’t serve people who have additional disabilities. I will spare you from the boring play by-play of how we came to find an amazing service dog training program called 4 Paws For Ability, unless you really really want all the details in that case email me…

Once we found 4 Paws we had to fill out an application, information about Julian and his disabilities,   provide references and approval from Julian’s doctor.  We mailed the packet. We waited patiently, well, Julian not so patiently… then an email came asking to schedule an interview! Ahh, the excitement of making measurable progress.

The interview gave us the opportunity to talk about what tasks the dogs can do and which ones would be beneficial to Julian.  I got to ask the list of questions we had been compiling. And then the great news! Julian’s application has been approved, your “official” packet of information will be coming to you within a week.

To say that Julian is excited with the news is, well, an… UNDERSTATEMENT! He is very happy and can’t wait to get the dog. His first question was can the dog back float? Uh…I don’t know if the dog can swim… but I will be sure to pass that along to the trainers. :-)

So, what happens next?  We have to raise the money for the dog, and once that is done it will take 6-9 months of additional training to customize the dog for Julian and then we will travel to Ohio to spend 10 days in training with the dog before Julian finally gets to bring it home.

How is Julian handling the waiting? I told him that his service dog is in dog school right now and that before Julian gets the dog, Julian will have to go to dog school too.  Now every morning he tells me he is ready for dog school too.  :-)

The corner-stone for living a life of self-determination is person centered planning.  Creating a person centered plan involves getting all of the people central to the person with a disability’s life, their support system, and helping that person create a vision for how they want to live their life and the direction they want to follow for the next 3-5 years.

A great resource for person centered planning and more detail on what one is and how you do it can be found at Pacer’s website:

http://www.pacer.org/tatra/resources/personal.asp

Julian decided that having so many people that he cares about all in one room at the same time, it must be a party! He is totally right, this party is a celebration of his life, his dreams and goals.  In October of 2009, we got together and had one great party with the outcome being Julian’s MAP (shown below).

Julian came up with a list of goals:

He wants to have a golf cart so that he can drive.

He wants to have a large soup pot of his own.

He wants to have a service dog.

He wants to have a home of his own.

He wants a job.

He wants to graduate from the Iowa Braille School.

He wants to go to prom with Randee.

Each person attending the PATH signed their names to his map showing their willingness to continue to support Julian and his life’s goals.

One of the outcomes of the person centered plan was the decision to create a microboard for Julian.

Who is Julian?

Julian is an energetic, outgoing young man determined to live life determined by the self. 

You might say ,”huh?” after reading that.

 For the average person self-determination isn’t even given a second thought, it comes naturally you are in control of your own destiny. You decide where you live, what you eat, what you wear, where you work and who your friends are.  For a person with a disability self-determination isn’t always an automatic or a given. For a person with a disability protecting the basic right to choose your own life is a daily battle. 

 Julian and his family have a different view on life, we believe that every person with a disability or without should have the right to live the life they chose.

Julian experienced a traumatic brain injury in early infancy, today Julian lives in North East Iowa with his mom (Leah), his step dad (Kevin) and two shi-tzus Morgan & Mischief.

Julian is a 10th grader and attends the Vinton-Shellsburg High School in partnership with the Iowa Braille & Sight Saving School.

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